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Resources
on Alzheimer's Disease and Dementias
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Fast Facts
Some quick information about Alzheimer's disease and
how it affects people with intellectual disabilities.
The Arc of
the US's Fact Sheet on Alzheimer's Disease and People with Intellectual Disabilities
A detailed fact sheet on the nature of Alzheimer's disease
and people with intellectual disabilities -- issued by the Arc of the US and
containing information of interest to the United States.
Alzheimer's Disease
International's Fact Sheet on Dementia and Intellectual Disabilities
A detailed fact sheet on Alzheimer's disease and people with
intellectual disabilities developed for Alzheimer's Disease International and
written from an international perspective. A .pdf file, requiring Acrobat Reader,
is attached. This fact sheet was developed for use by Alzheimer's International
by Dr. Heather Wilkinson of the University
of Edinburgh, Dr. Matthew Janicki of the
University of Illinois at Chicago, and Dr.
Arthur Dalton of the NYS Institute for Basic Reseach. It is also available on ADI's website at
http://www.alz.co.uk/adi/publications.html
A Spanish version of the file is also available at
http://www.alz.co.uk/adi/publications.html
Edinburgh Principles
Internationally acknowledged community care management principles
and recommendations -- issued by the International Association for the Scientific
Study of Intellectual Disabilities.
Take a quiz on dementia
and intellectual disabilities
20 questions to test your knowledge of some basics on dementia
and people with intellectual disabilities.
Resources
Working bibliography
on dementia care and intellectual disabilities
An extensive annotated bibliography compiled by the University
of Illinois at Chicago on books, manuals, videos, journal articles and reports
of relevance to community care management of adults with intellectual disabilities
affected by dementia.
Links to organizations
Relevant and helpful organizations concerned with Alzheimer's
disease and intellectual disabilities.
Links
to the AAMR/IASSID dementia reports
PDF versions of the original four AAMR/IASSID reports on
care management, epidemiology, diagnostics, and tests/assessments related to
dementia and people with intellectual disabilities.
Assessment Instruments
Source information for obtaining commonly used instruments
used to assess presence of dementia in adults with intellectual disabilities.
Recording
Behaviors for Dementia Assessment
Protocol developed for agencies interested in video or digital
recording of functional status of adults with Down syndrome at risk of
dementia
Meetings, conferences,
workshops
Listing of upcoming events of relevance on the topic of dementia
and intellectual disabilities.
Information about the Preparing Community Agencies for Adults Affected by Dementia
Project (PCAD Project) Precis about the NIDRR funded
research project on how community agencies adapt their services for adults with
intellectual disabilities.
Links
The Arc Booklet on Alzheimer's Disease
The Arc has issued a family/staff oriented booklet on Alzheimer's
disease and developmental disabilities. The booklets can
be purchased from The Arc -- go to
The Arc - and type in "dementia" in the SEARCH box.
What Is Dementia? - A Booklet about Dementia for Adults
Who Have a Learning Disability
Booklet issued by Down Syndrome Scotland for use by persons
with limited intellectual abilities explaining
dementia and basic care issues. A companion booklet on what is death, using
the same format, is also available.
Copies may be obtained from: (Down's
Syndrome Scotland, 158/160 Balgreen Road, Edinburgh, Scotland EH11
3AU) or one can be downloaded by clicking below
| Download booklet - What is Dementia?.pdf |  |
| Download booklet - Food for Thought.pdf | |
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Down Syndrome and Alzheimer's Disease -- A Resource
List
Compendium of useful references on Down syndrome
and Alzheimer's disease issued by the Alzheimer's
Association in Chicago, Illinois (USA).